Community Calendar
Wednesday / February 8, 2012 / 5:55pm (doors close shortly thereafter)
topic: to be announced
w/ Edward Hallowell, MD
location:
St. Thomas More Church
65 East 89th Street (basement)
between Madison and Park
NYC 10128
sponsor:
CHADD-NYC
[Children & Adults With Attention-Deficit/Hyperactivity Disorder,
New York City chapter]
info:
212-721-0007
addrc@mail.com
www.chadd.net/107
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STRATEGIZING
A primer about ADD-related coping skills --
"ADD Crusher Video 1" by Alan Brown --
has its origins in the Support Group.
The video can be previewed at
www.youtube.com/user/ADDCrusher
which offers four short segments. It can also be purchased
www.amazon.com/ADD-Crusher-Video-I/dp/B006JJ6MEE/ref=sr_1_1?ie=UTF8&qid=1324801562&sr=8-1
through Amazon. Alan writes:
It's particularly meaningful for me to be telling you this, since as I've mentioned in countless MAADDSG meetings, my own ADD awareness,
diagnosis, treatment and development of my strategies began over 15 years ago at MAADDSG.
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ADD BLOG
From a correspondent:
I've just started a blog
www.wp.me/p21i7m-V
where I write about my struggles with learning disabilities/ADD.
The name of the blog is Puzzle Pieces.
I've also done some writing at the website ADDConnect
www.addconnect.com
which has a big discussion forum.
I've gotten some good feedback from posts I have written there.
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MEN'S PHONE GROUP
From another correspondent:
A free telephone support group for men with ADHD has started.
It will be a telephone meeting once a week for men
who would like support and resources for dealing with ADHD.
The leader has ADHD, is a former counselor, but retired.
There is no fee or ever will be.
The telephone call is your cost;
it is not an 800 number.
contact:
Bob
healingh20water@gmail.com
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SCHOOL $$$
Two organizations --
Shire US Inc. (maker of Adderall XR, Vyvanse and Intuniv)
and the Edge Foundation (which promotes academic coaching at the college level) --
will provide money and assistance to ADDers bound for higher education.
According to one announcement:
This scholarship is intended for US citizens
accepted at or attending an approved college,
university, vocational school, or technical school
as an undergraduate student that has been diagnosed with ADHD
and is under the care of a licensed health care professional for ADHD.
There are now 50 scholarships available,
each for $2,000 for the academic year tuition,
and each includes a full year of student coaching
(valued at a lot more than the $2000).
application deadline:
March 30, 2012
info:
www.shireadhdscholarship.com
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HEALTH COVERAGE UPDATE
Almost by definition, AD/HD is a pre-existing medical condition.
The 2010 Patient Protection and Affordable Care Act (ACA)
featured a provision for those who have been denied coverage by private insurers
because of a pre-existing condition.
The new Pre-Existing Condition Insurance Plan (PCIP) --
which, in the Tri-State Area, will be run by the state governments --
provides an option for US citizens who have spent six months, or more,
without coverage.
PCIP will not be permanent.
Rather, it's designed to tide people over
until ACA's main provisions kick in 2014.
info:
www.pcip.gov
For more information about ACA --
coverage for young adults; reimbursement appeals;
cancellation appeals; and other topics --
surf to:
www.HealthCare.gov
Also at this site: information about Medicaid.
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MEDICATION SHORTAGE
Had trouble finding a drugstore
stocked with brand-name Adderall?
Or trouble finding a generic or "authorized generic" version of Adderall?
Or trouble finding one of the other amphetamine preparations,
like generic dextroamphetamine or "d-amphetamine salt"?
Or a brand-name version of this, like Dexedrine or Vyvanse?
Or: have you had trouble of finding generic methylphenidate?
Or a branded version of this (Ritalin, Concerta, Focalin, Metadate, Daytrana)?
Or have you found a store
which can fill one of these prescriptions,
only to be told that the price has gone through the roof?
Would you be willing to go on camera --
if necessary, with a blurred facial identity --
to talk about your experience?
If so, contact:
Lou Young
CBS 2 News
917-682-0199
lyoung@cbs.com
This would be for an ongoing story;
an initial report ran on November 14.
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We're barely into 2012, but recent news items include:
www.reuters.com/article/2012/01/01/us-adhd-adderall-shortage-idUSTRE80009E20120101
www.webmd.com/add-adhd/news/20120103/adhd-drug-shortages-why
consumer.healthday.com/printer.asp?AID=660423
www.nytimes.com/2012/01/01/health/policy/fda-is-finding-attention-drugs-in-short-supply.html
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Also, there's a policy statement
www.chaddleadershipblog.blogspot.com/2012/01/why-cant-i-get-my-adhd-medications.html
from the leading ADD advocate organization.
Which is also collecting names
and contact information
of people willing to be interviewed.
The notation reads:
Please title your email subject "NY Metro media request"
and give a short paragraph of what you would have to say if selected.
contact:
Susan_Buningh@chadd.org
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ADD BLOG From a correspondent: I've just started a blog where I write about my struggles with learning disabilities/ADD. The name of the blog is Puzzle Pieces. I've also done some writing at the website ADDConnect which has a big discussion forum. I've gotten some good feedback from posts I have written there. ------------------------------- MEN'S TELEPHONE GROUP From another correspondent: A free telephone support group for men with ADHD has started. It will be a telephone meeting once a week for men who would like support and resources for dealing with ADHD. The leader has ADHD, is a former counselor, but retired. There is no fee or ever will be. The telephone call is your cost; it is not an 800 number. contact: Bob ------------------------------ STOCKING STUFFERS What's to read? Recent books -- most of them in paperback -- include: Sidney Parker Holt ADD Simplified: Strategies for Minimizing the Effects of Adult ADD or ADHD Hendrix International Press, 2010 Medifocus.com, Inc. The Medifocus Guide to Attention Deficit Hyperactivity Disorder
CreateSpace, 2011 Patricia Quinn, MD 100 Questions & Answers About Attention Deficit Hyperactivity Disorder (ADHD) in Women and Girls Jones & Bartlett, 2010 Stephanie Sarkis, PhD Adult ADD: A Guide for the Newly Diagnosed New Harbinger, 2011 Mary V. Solanto, PhD Cognitive-Behavioral Therapy for Adult ADHD: Targeting Executive Dysfunction
Guilford Press, 2011 Ron Sterling, MD Adult ADD Factbook: The Truth About Adult Attention Deficit Disorder Unsheepable Publications, 2011 Most are available in e-editions as well. ------------------------------ SCHOOL $$$ Two organizations -- Shire US Inc. (maker of Adderall XR, Vyvanse and Intuniv) and the Edge Foundation (which promotes academic coaching at the college level) -- will provide money and assistance to ADDers bound for higher education. According to one announcement: "This scholarship is intended for US citizens accepted at or attending an approved college, university, vocational school, or technical school as an undergraduate student that has been diagnosed with ADHD and is under the care of a licensed health care professional for ADHD. "There are now 50 scholarships available, each for $2,000 for the academic year tuition, and each includes a full year of student coaching (valued at a lot more than the $2000)." application deadline: March 30, 2012 info: ----------------------------- HEALTH COVERAGE UPDATE Almost by definition, AD/HD is a pre-existing medical condition. The 2010 Patient Protection and Affordable Care Act (ACA) featured a provision for those who have been denied coverage by private insurers because of a pre-existing condition. The new Pre-Existing Condition Insurance Plan (PCIP) -- which, in the Tri-State Area, will be run by the state governments -- provides an option for US citizens who have spent six months, or more, without coverage. PCIP will not be permanent. Rather, it's designed to tide people over until ACA's main provisions kick in 2014. info: For more information about ACA -- coverage for young adults; reimbursement appeals; cancellation appeals; and other topics -- surf to: Also at this site: information about Medicaid. ------------------------------ ADDERALL SHORTAGE Had trouble finding a drugstore stocked with brand-name Adderall? Or trouble finding one of the generic versions of Adderall? Or trouble finding one of the other amphetamine preparations, like generic dextroamphetamine or "d-amphetamine salt"? Or a brand-name version of this, like Dexedrine or Vyvanse? Or: have you had trouble of finding generic methylphenidate? Or a branded version of this (Ritalin, Concerta, Focalin, Metadate, Daytrana)? Or have you found a store which can fill one of these prescriptions, only to be told that the price has gone through the roof? Would you be willing to go on camera -- if necessary, with a blurred facial identity -- to talk about your experience? If so, contact: Lou Young CBS 2 News This would be for an ongoing story; ---------------------------------------------------------------------------------- ---------------------------------------------------------------------------------- WHO'S WHO AT MAADDSG
The Manhattan Adult ADD Support Group is in fact two individuals --
> Paul Jaffe, the coordinator, who uses these addresses:
> "Brad Bradley," the publicist and webmaster, who uses these addresses:
-- and we apologize for any confusion.
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